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Health Topic:  Navigating Healthcare

Hectic Healthcare System

Focus:  Communication in Healthcare

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There are many types of communication in healthcare that can greatly affect the care you receive. Clients, patients, insurers, and providers all play a pivotal role in effective communication.  The two types of communications focused on here are health record communications and shared decision making.

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(Note: Links to articles, resources, media, and tools are for information purposes only. Always consult with a medical provider before implementing any treatments or measures and decier if the information is useful for you. Caring Support & Solutions is not held responsible for any misinformation.

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Resources & Tools

The digital era has everyone online, including health records. The challenge for consumers is having access when needed. For one, several health systems are now charging patients for access to their medical records, and the ones that do not tend to have a multi-step process to obtain the information.  There are free platforms that sync and store your medical records that are HIPAA compliant.  One of the platforms that I will share is called OneRecord. The process is simple, and as of right now, they do not charge.  You can store medical records, notes, and insurance records all for free.  

OneRecord image

Posted March 2026

If online records are unavailable due to an outage or system error, we highly recommend that a written account of medical care and regimen be kept on hand in the event of an emergency. A hard copy of information, reports, etc., can be useful for many reasons. Written documents are great for doctor's appointments and can be a reference for home health. 

There are some suggested notebooks that you can either purchase on Amazon or you can download for free.  Amazon has a Medical Visit Logbook that has general sheets where you can document information and take with you on appointments. Another good option is the templates from Family to Family, which are free.  They are specifically for children with special needs, but can be used for adults. Keep in mind that healthcare professionals should obtain copies of reports or lab results and should not use notes in a notebook as documented medical results. 

 

Posted March 2026

Family to Family website

Articles & Research Summaries

Best Practice Alert! - Share Decision Making (Hoque, 2026)

Shared decision making (SDM) is a communication process by which patients and clinicians work together to make optimal health care decisions with patients. SDM works best when information is clear and unbiased. The risks, benefits, and burdens are discussed, including no intervention. All providers who have expertise in the areas discussed are present. The meeting ends with goals, informed preferences, and concerns, and possibly action items.

Posted March 2026

Every time a nurse or doctor ends a shift, critical details about your loved one’s care must be passed along to the next provider. This exchange is called a patient handoff and is one of the most important moments in healthcare, and one of the most vulnerable. Research shows that handoff failures are connected to 50% to 80% of medical errors and patient harm, including medication mistakes, surgical errors, falls, and delays in treatment (Arora et al., 2005; HCPro, 2017). The Joint Commission reported that 30% of malpractice claims were tied to handoff failures, costing over $1 billion in just five years (TJC, 2017).

The good news? Families don’t have to stand on the sidelines. You are a vital part of your loved one’s care team, and your involvement during handoffs can make a real difference. Here are some ways you can help ensure that accurate, complete information reaches the next provider.

What Families Can Do

  • Keep an Updated Care Summary. Maintain a written list of your loved one’s diagnoses, medications, allergies, and recent changes in condition. Offer this to each new provider who takes over care.

  • Be Present During Shift Changes When Possible. If the care team allows it, being present during a handoff gives you the chance to hear what information is being shared and to speak up if anything is missing or inaccurate.

  • Ask Questions and Clarify. Don’t hesitate to ask the incoming provider, “What is the current plan of care?” or “Are there any changes I should know about?” Your questions can catch gaps before they become problems.

  • Speak Up About Changes You’ve Observed. You know your loved one best. If you’ve noticed a change in behavior, pain level, or appetite, share it directly with the new provider. These observations may not be in the chart.

  • Designate a Family Point of Contact. Choose one family member to serve as the primary communicator with the care team. This reduces confusion and helps providers know who to update.

Patient handoff may happen behind the scenes, but its impact is felt at the bedside. By staying informed and engaged, families can be a powerful safety net by helping to ensure that no critical detail falls through the cracks.

Posted March 2026

Tips & Media

Communication is a Two Way Street: Patient Involvement in Care

Some of the biggest barriers to getting care are not being prepared to speak to your provider and believing that the doctor knows "best." This includes writing down questions, preparing an agenda, and ensuring a translator is available if needed. Older generations are uncomfortable either discussing sensitive issues or questioning a provider.  The patient is the main member of the team and should take an active role in preparing and guiding any doctor visit, whether in an office or at the bedside.  Here is a video that offers some insight and an acronym to guide the conversation.

Talking with you doctor

Posted April 2026

This Video describes the five elements of the SHARE Approach to share decision making.  It is taught to an audience of care providers but is useful for patients as well. 

Share Approach Video

Posted March 2026

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